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Promising interim results from the Psoriasis Mandate have been released to mark World Psoriasis Day. To date 1145 people across 40 European countries have pledged their support for five basic rights of people with psoriasis, but experts are urging people to keep signing the Mandate to drive much-needed improved standards of care.
Professor Matthias Augustin, University Medical Center of Hamburg, Germany, and Chair of the European Expert Working Group for Healthcare in Psoriasis (EEWGHP) says “Psoriasis affects approximately 14 million(1,2,3) people across Europe and there is significant variation in the standard of care people receive. Great steps are being made in the management of psoriasis, but lack of awareness and understanding of the condition by policy-makers and the general public adds to the distressing stigmatisation of this disease. The Psoriasis Mandate is our opportunity to give a voice to people living with psoriasis; to help them demand the high quality care that they deserve – please sign it.”
The Psoriasis Mandate launched earlier this year by the EEWGHP, Janssen* and The European Umbrella Organisation for Psoriasis Movements (EUROPSO) to provide an opportunity for the community at large, people with psoriasis and their healthcare professionals to pledge their support for achieving the best care possible for those living with psoriasis. Anyone can sign the Psoriasis Mandate (www.psoriasis360.com/psoriasis-mandate) to show their support for five key rights of people with psoriasis:
- Early and accurate diagnosis
- Access to a specialist for regular treatment review
- Access to effective treatment options
- Involvement and choice in a treatment plan with defined goals
- Understanding and support from society to live a normal life
To date, 18% of people who have signed the Psoriasis Mandate have psoriasis, 19% have family members or friends across Europe with psoriasis, 21% are healthcare professionals, and 42% of signatures are from members of the public who simply support the cause, demonstrating the growing support and understanding of the need to help people living with this debilitating condition.
The Psoriasis Mandate followed the publication of the first-ever Psoriasis White Paper in July 2012 by the EEWGHP,(4) whose principle aim is to improve clinical outcomes and quality of life for the 14 million people living with psoriasis in Europe.(1,2,3) The White Paper addresses the under-treatment of psoriasis in Europe and provides a framework for action.
It calls on healthcare organisations, healthcare professionals, European regulatory bodies, governments, industry, academia and patient advocacy groups to act together implement change. The Psoriasis White Paper is available free of charge via a special feature page on the Journal of the European Academy of Dermatology and Venereology (JEADV) website (http://onlinelibrary.wiley.com/doi/10.1111/j.1468-3083.2012.04576.x/full).
Mr. Ottfrid Hillmann, President of EUROPSO, says “For too long now psoriasis has been a low priority. These days it is possible for people with psoriasis to live a normal life, but that can only be achieved through early access to high quality care. We continue to call on all people involved in the management of psoriasis, including healthcare professionals, people with psoriasis, their families, and governments, to pledge their support to improve care across Europe. We are all working towards a brighter future for those with psoriasis, but this will only be achieved with a unified approach.”
References
- Augustin M, Herberger K, Hintzen S et al. Prevalence of skin lesions and need for treatment in a cohort of 90880 workers. Br J Dermatol 2011; 165(4): 865–873
- Parisi R, Symmons DP, Griffiths CE, Ashcroft DM, on behalf of the Identification and Management of Psoriasis and Associated ComorbidiTy (IMPACT) project team. Global Epidemiology of Psoriasis: A Systematic Review of Incidence and Prevalence. J Invest Dermatol 2012 Sep 27 [Epub ahead of print]
- Ortonne JP, Prinz JC. Alefacept: a novel and selective biologic agent for the treatment of chronic plaque psoriasis. Eur J Dermatol 2004; 14: 41–45
- Augustin M and The European Expert Working Group for Healthcare in Psoriasis. A framework for improving the quality of care for people with psoriasis. JEADV 2012, 26 (Suppl. 4), 1–16
*Financial assistance for The Psoriasis Mandate and roundtable discussions and writing support for the Psoriasis White Paper was provided by Janssen, more specifically Janssen Pharmaceutica NV, Belgium.
